If anyone would care to have a better understanding of just what Cully has then the link below is well worth looking at. You will be able to see just what has transpired over the last couple years with Trevy, another boy with this condition. His Mom has done a really great job of describing what I.S. is all about by sharing their day to day journey with Trevy. Trevy has been seeing the same doctor that just took in our Cully. They call him "Dr. Rockstar"..
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