Wednesday, August 8, 2012

We had a good run anyways...


Seizures are back. Just 30 minutes shy of the 72 hour mark. Still holding out hope that the drug will work though. We are just in the first stage of it and making adjustments to it or combining other medications may still do the trick. 
On a more positive note we have learned that the world renowned doctor for I.S.that children from all over the world come to see has scheduled a "non clinical" day to visit with Cully. This means he has asked to have a day where he will have more focused time with Cully. We are so happy that he has taken Cully under his care. 

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