Day one....Vigabatrin

Cully just got his second dose at 8pm. What have we noticed thus far???  That a few people must have been crossing their fingers today for Cully. Only one cluster of seizures today. After his first dose I had repeated calls from home.. Julie says it was like Cully woke up! I returned home and found clear speech, alert and playful, and smiles. Not that it was a drastic change but a notable one for sure. Unfortunately 7 hours after his first dose he did have seizures but only that one cluster.  His second dose took little time to bring a big smile to his face and uncontrollable laughter while playing with him. It sure does not help him sleep though..