Saturday, August 18, 2012

Vigabatrin increased... NO SEIZURES


Dr Rockstar increased the meds and Cully has not had a noticeable seizure in over 84 hours. This is GREAT !!!! 
Cully has an appointment with Neuro Psych on Monday and a PET scan the following week. We are getting him involved in as many social activities as possible to help with the autistic issues and are searching for help for mum and I so that we can learn more about autism and what we can do. 
Todays big Cully moment??  While on a car ride Cully keeps yelling STOP! STOP! Thinking his brother is giving him a hard time we both turn to see whats going on. We find Cully pulling his own hair and getting mad at himself for it. It was a  "had to be there"  moment.......Not sure who won that argument......

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