Come on already and knock it off. Geez "Life"... You can't be serious? You are going to be this much of a pain?
Why don't kids come with removable battery packs?
I wonder what the other families were thinking at the play place when I pointed and shook my finger at Cully and used my stern voice to say "YOU CAN NOT USE AUTISM AS AN EXCUSE TO ACT THIS WAY" !
I have no idea what to do.. or even how? The only idea I have in my head thus far is... If Cully does not learn to stop doing "this or that" right now he probably will keep doing it forever. ?? Maybe I'm wrong? Maybe right?
Status : seizures as usual. Oblivious to the word s "No" or "Stop".
The meltdowns become more crafty as he will now refuse to make eye contact with me and has the reasoning ability of one of my daughters at age 15.
Did I mention he's cute though?
Bethany has a definite pattern of her behavior deteriorating just before her seizure clusters. I really don't think that she can always control her behavior. Cully's meltdowns might be pre seizure behavior too. It's something to think about anyway. I feel for ya! I don't wish that on anyone. Hope tomorrow is a better one!
ReplyDeletehttp://faithfulmomof9.wordpress.com/2012/09/06/under-siege-in-my-own-home/
Really? This is good information. I am going to really watch today and see if I can find any pattern like this.
ReplyDeleteOh, sometimes I forget to include just how many great things happened through the day as well. All in all, even with the behavior issues its fantastic spending some time with Cully.
There is SOOOOOOOOOOOOOO much to say about this.
ReplyDeleteA quick two things that helped us when Trevy was younger, seizing all the time and we didn't know what to do:
First - Then technique. It's super simple and easy to implement. So lets say Cully is throwing a fit because he wants ice cream. But your rule is "first eat dinner...then eat ice cream". With simple words you remind him (over and over and over and over) First Eat Dinner Then Eat Ice Cream. It's helps to have a visual too. A simple First Then board with velcro or on the iPad if you have one. Making it very clear what will happen now is connected to what happens next. This is implementable over every area of life. First clean up toys then watch tv. First say sorry then play game. Yada yada.
For bolting...because Oh My Stars was Trevy a bolter! He still will now...but he's much less unpredictible than he used to be.
SO for bolting we would sit him down IMMEDIATELY and use simple words to say "Holding hands is safe. You MUST be safe". We'd then walk another two steps before he'd try to pull away and run off again...so we'd sit him down immediately and repeat. This is EXHAUSTING...but it's so important to be consistent. Now, Trevor's cognitive ability was VERY low. Cully may be further along and it may be easier to teach him to be safe. He may also respond better to a leash? We used a leash for a LONG time too. Because sometimes blocking the behavior is easier!
These are simple (but again...exhausting because it requires much consistency) techniques that have worked for us. Although, I will say that progress has been easier now that Trevy's seizures are more controlled. When his EEG gets more cranky...we DO see a correlation with his behavior. I don't use it to excuse his behavior because to be honest, sometimes special needs parents drive me bonkers by excusing away their children's behavior. BUT it's important to help me (and you) understand realistic expectations too.
I give hugs a lot cause I'm Italian-ish...sooooo XOXO
...danielle