Seizure Fest 2012

Here we go. Today has been about the worst yet. A day filled with seizures.  About the hardest seizures I have seen yet too. There has been no change in Cully's diet,sleep, or medications to trigger these.  Today's events have been no more than smiles, hugs and loves, a nice relaxing nap and snuggles.

We still are waiting for test results and can not start the Ketogenic diet without them. We did have a visit with the neuro phych in regards to the autism. The doctor determined that there is a need to have  a respite care worker visit with Cully once a week for a few hours. I think the need seen was really to give a few hours to mum to breath and get things done. Cully requires attention 100% of the time. If he is out of site he is on the counter, in the stove, climbing out a window or something even more dangerous. Mum takes care of getting the boys off to school, the house, the doctors visits and insurance companies. She keeps the food in the house and cooks, cleans, and still finds time to spend time with all of us. All this with Cully under guard the whole time. The boys help out alot but its really all on mum. I leave for work each day and my efforts are hardly a drop in the bucket.

The evaluation visits with the neuro phych were perfect as while there Cully escaped everyone and in a split second he was on an elevator with buttons pushed and the doors closing. He also knocked over a table, grabbed a can of Patato chips off the desk, drew all over with a marker, ate a few marbles, and broke the doctors glass decorations. They had a front row seat to Cully and a day in the life of our home.

A couple other things I failed to post over the past couple weeks..... Cully got his long hair cut off and he looks great..  we also took a family trip to the cider mill.