Cully returned home today. He has started the ACTH treatment and is doing well. He is in a very unusual happy mood to the point he is just down right giggly and lovey. He is giving his brothers hugs over and over again out of nowhere. He sat down on the floor, grabbed his brothers Detroit Tigers cap (GO TIGERS) and put it on his head sideways and grabbed the Ipad. He opened up YouTube and said "HIKE HIKE" while looking for football videos. (His Dougie has him obsessed with football). He then put on "Pop goes the weasle" stood up, got his two big bro's to hang by his side and said " HERE IT COMES" "HERE IT COMES".. and then???? yep.... POP GOES THE WEASLE !. Then Cully put his favorite song/video on... "Some Nights".. He stood up and performed an ENTIRE choreographed dance routine to this song. This was complete with all the facial expressions of a constipated politician and the hand gestures to go with it. Cully has even done something none of my children have done yet. He held a perfect rhythm with the beat and his foot stomp and hand clap.
While at the hospital Cully found a nurse that he was quite fond of by the name of Becka. She was a wonderful young lady that reminded me so much of my daughter Brittany. Cully made good friends with Becka and each time she came in and took vitals, or did much of anything Cully would hold up two thumbs and tell her "Good Job".... Becka had to take a blood sugar test and poked Cully's finger. This was something Cully did not appreciate much and he wimpered and wined. Once the poke was done Cully held up his thumb and said in a shaky cry-winey voice....."Good *sniffle-sniffle* Good Job"
That makes me SO happy! It's such a good sign that his mood is happier...I think it means he's handling the med well AND maybe it's calming down his little brain!
ReplyDeleteI needed to read something happy today...and this did it for me!
xo to you guys!
...danielle
That's so sweet! Glad he's in a happy mood! I'm praying for the treatment to stop those nasty seizures!
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