The ACTH arrived this morning. I feel like a scum having my elderly parents take possession of the shipment of drugs but I had a full day of meetings and work and Julie had to take Cully to a group session today. Mom and Dad took the shipment at 10 am this morning and placed the ACTH in the refrigerator as if it were nitroglycerin. And at $35,000 it may as well been.
Cully will visit Detroit Childrens Hospital with Mum on Tuesday to begin the drug. All we can do is cross our fingers.
Cully continues with his usual seizures but seems to be happy short of yesterdays melt down. This kiddo is smart and sometimes I wonder if he is faking it all.
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