Cully is nearing the end of his Vigabatrin treatment and we are still in the game. He has slowed down again in number of seizures since the last increase. Yesterday was a good day all around.
We are crossing our fingers that he will keep those seizures to a minimum so that he can get in and get that EEG that Dr Chugani needs. We are most likely going to get this done in the next few days and will be driving anywhere needed to get it ASAP.
Cully has a new App on the IPad. He is creating his own music with drums and piano. I will have to get some audio/video posted of our little musician. Perhaps music is going to be his thing?
We met up with some of the family at my sisters house this weekend and Cully went swimming. And he did GOOD. With a life vest on he walked right off the steps into the deep water and did the doggie paddle. Over and over again. During the entire visit he had just a normal day without any seizures that I saw. Some tiny ones mum noted but he was just having a great day.
Thats all the news today. I'm sure the next few days will be interesting and updates will be posted. I hope this new webpage will be easier to use and here I can post more videos pictures and such to share.
Please sign up on this page to join Cully's Army. He will send you updates and an occasional picture to your email if you do.
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