Changing the focus for a bit

 Cully continues to have a reduction in his seizures these past couple days. We are continuing the Vigabatrin treatment right to the end and we still have hope.

 Today has been a "melt down" day. We have Cully back from the hospital and it seems that only his attitude has been an issue thus far. He has drug mum down and has truly shown us his dislike for not getting his way. This is the autism.

  We are focusing on his autism and sensory disorder for the moment. His occupational therapist AND his special needs therapist both visited today together and we all sat and worked on new techniques with Cully and are getting ready to attend a program that will teach mum and I how to work with Cully as he learns in this great program for special needs.

  Making great progress on our "patience" project. When upset I only have to tell Cully "PATIENCE" and he will stop and take a deep breath before having a complete melt down. Not quit the outcome I was looking for but you can see just how smart my boy is. And we will connect the deep breath with stepping back from the problem and relaxing a bit. I have no doubts at all. But it will take a little time to get there.

  Still doing very good on using the potty. Not perfect mind you.. which is why I am currently draining the hot tub...   OOPS !  thanks Cully........

   We have a truly fantastic family in Detroit for their sons second and third brain surgery. Will's mother has been a great help for many families going through having a child with IS. She posted today a great description of what IS is all about by posting some pictures of EEG read outs.

First is a normal EEG.

 And second is an EEG of a child with IS.AND THIS IS EVEN WHEN THE CHILD IS NOT having seizures.

 An EEG shows electrical activity in the brain.  And this is why we need to stop this right away.

It was these two pictures that finally got me to understand what exactly is going on.