Cully will not be starting the ACTH drug. The doctor has prescribed the Ketogenic diet. While we do not know a lot about this yet we know it has been used very often with IS and we also know that it is a big undertaking. Nervous we will not do this right and I do know that just a single cracker, bite of a cookie or anything at all not exactly perscribed will mess the program up.
Now, how do we pull this off with a child that eats more than the rest of us and also eats anything he can find. Like crayons, bugs, paper, etc....?? Having the other kids around is not going to help either....
On the other hand it is not a $40,000 drug either....
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