Well here we are high up in the Marriott looking over the falls. One million things to do but all that is important to Cully is that he has a bed to jump on. 30 minutes of bouncing and still laughing at the top of his lungs.
Last night Cully woke up fussing a bit and when i put my hand on him he snapped "no" and went to mum. I turned over and went back to sleep. A moment later i felt him tapping his finger on me. I turned to him and found him giving me a little wave and a smile. I think it was a "i'm sorry". This morning he woke up looking at me and smiled. Another good day. We drove to a bunch of old towns hidden on the back roads. Found a Subway and got four foot longs and some soda pop. Drove to a little park and goofed around and ate.
Seizures are plenty still and the meds don't seem to be doing anything. Mum thinks perhaps a little less seizures than before. We researched the meds he is on and found it is a brand new drug. Don't like that much.
Going to take the boys to the falls and all the attractions now. Will have a good grip on Cully though.
Got a pic of Cully's first look at the falls. It followed with a "wow"
No comments:
Post a Comment