All in all an ok Cully day. Mum says he woke up a grump and a handful but when Daddy returned from work I found a Cully waking from his nap in a very good mood. I did not observe a single seizure today but mom did say she saw one this morning. That is a great sign.
We were about to put Cully on the new medication that has me so worried when we received a phone call today. Two people we hold in very high regards had heard about the intent to put Cully on this medication. We were informed just how dangerous this drug is and with no questions asked Julie and I will refuse the drug for the baby. This information comes from people we trust completely and are extremely credible. Their intervention may very well save Cully from even further troubles in his life. But on the other hand we are very worried just what to do from this point. If we do not stop the seizures immediately Cully will no doubt suffer the brain damage that this particular type of epilepsy causes. Tomorrow we will inform Childrens Hospital that we will not agree to the drug and see what options we may have. With luck I will find someone that might be able to open the door to a neurologist that can work with us to find a quick solution.
I hope tomorrow is as good for you as today Cully.
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