What a great day

Lots of smiles all around. Cully has perked right back up and is interacting almost like usual.

AND NO SEIZURES AT ALL!!

 Today his big sister got to surprise him with a visit. They walked together, played and Elora even fed Cully a nice supper.  The left arm has completely stopped shaking, he digestive system has improved a lot, and the potassium level reached almost normal before declining a bit again.

 So here is what seems to be happening. The ACTH drug is causing the kidneys to not allow the potassium, electrolyte  or calcium levels to remain normal. But...  the kidneys have not failed. They simply are tricked into not building these levels in Cully while the ACTH is present. No damage to the kidneys has been done and once the treatment of ACTH is complete the kidneys will function the way they should.  Until then we will be giving Cully supplements of all three and he will be monitored very closely.  The ACTH was also increased in the middle of all of this...... And he has not had a seizure.

 Low potassium will cause the digestive system to not do its job. Replenish the potassium and things should function again. Low electrolytes will cause muscle spasms. Replenish those and the muscle spasms/ shaky arm should stop.  It has...

 Further tests tomorrow should tell us if this is all correct or if we have something else going on. If things do stabilize in his levels and Cully's digestive system comes back to par then he may even come home very soon.  His tummy still continues to get very hard he is having a good bit of pain with cramps and such. Things just have not come back enough yet in that department so fingers are crossed that we get this worked out. Another thing we need to monitor is his heart. He has had some episodes of low heart rate and palpitations.

 We were in such bad shape over these past few days and now we see things looking so cheery. We have gone from desperation to excitement. My boys have really shined with all of this. Sawyer has been so understanding and patient. Doug has been so grown up and helpful, kept to his school work and been kind with his words and frustrations. He has been a true adult through this and I think these experiences are shaping his future.

  I think now I can relax and breath.....