Overdose and a Surprise for Cully

Last night someone at Detroit Children's Hospital made the mistake of giving Cully an overdose of ACTH, the drug we are so frantically trying to get out of Cully's system. He received a dose 5 times over what he should have gotten. Medical staff learned this late in the night and Cully was hooked up and tested again and again. The team has had close eyes on him but we are not seeing anything of the overdose at this time outside of an increase of cortisone and blood pressure. Because of this mistake we have lost the ability to continue the aggressive ween that began two days ago and now must increase his intake of ACTH and begin a ween that will take much longer. This is horrible for Cully.

Cully has not improved yet and he continues to hold fluid and is unable to do much of anything but lay on his back.We are not getting any better yet.

Today Cully has an amazing surprise and so did mum. My grandson whom we have not yet met. I surprised them by bringing lil Jaxon and my daughter to the hospital. I walked in with a handful of clothes for mum and acted as if I were about to drop them. Mum rushed over and lifted the clothes from my hand and found her beautiful grandson Jaxon in my arms. Cully's reaction would make a linebacker cry. We laid Jax down next to Cully and while he was unable to turn his head and look at him, his arm reached around him and he stroked Jaxon's hair, played beep the nose and held his tiny hand. The smile on Cully's swollen face was priceless and for a moment he was a very very happy boy.