So a letter  via email comes in to my mailbox today. A letter from a producer with ties to primarily PBS networks....
  "We would appreciate the opportunity to present your son in part in a documentary pertaining to the struggles of special needs children and their families in the current economic times that  we face today with government and social support. Your son in particular has had a dramatic and inspirational journey. "
  At first I was excited to know that my story of my son was heard. But it took no time for my true thoughts to kick in.
  Cully is unfortunate to have been a child to go through all that he has. And selfishly my wife and I have been unfortunate to have gone through all we have with him......  Or have we?
   But.......
 As we try to gain a footing after the expense of all we have gone through, one thing we are not is selfish enough to think that our story is one that deserves the headlines.
  We are in dire straights right now. I have never found myself in such a position as that of where I am now financially..... But I am in no way one that can be compared to so many others right now.  Perhaps something I wrote was lyrical or rolled off the tongue just right but there are so many others that need to be thought of right now.
 Julie and I met so many others whose struggles continue much further than us.  We have been so lucky with Cully and his progress.
  Bethany in New York has come so far and is fighting to overcome so many more issues right now. And Trevy, my little hero has made so much progress with his infantile spasms and all the hardships that come with it.... And the family around these children are so strong and committed...  
  The answer to the email I received is this....
  " Thank you for your interest in our very special son. We think it would be favorable to your interest to take a moment to look at a few other families who are dealing with similar issues at this time. We have been very lucky with our son and his health but think that others have had a much more intense and COMMITTED road than ours.  While we do not think that our wonderful son Cully deserves any less than all the hugs, kisses and praise that your audience would allow, there are others who have more to share.   Please take a moment to see the few people we are including in our response and give them a moment of your time to see the struggles that they have to deal with each day and the unknown future they have to focus on.  While we are still in an uncertainty with our son I think you will find the heart felt love, compassion and uncertainty that your viewers will appreciate and hold compassion for in the families I mention.. And as for us, they are our friends and support."
 I have not yet received a reply.
  I think that Cully is due for some make-up for all he has gone through...  I do not think that this is what it takes.  And when I have two nickles to rub together I hope that Cully can hang out with a couple cool special kids that we have come to know... And that is the sort of morals that I hope to have taught my autistic child. Through what ever channels it takes...  That will make me the Daddy I want to be....