Cully made the honer roll today !!

Cully has done it..... A clean EEG with no unseen seizure activity at all.  He is the champ.

It was only a few minutes after walking into Detroit Children's Hospital that staff walking by would spot their favorite Cully and stop in to visit. Cully wore a smile on his face as staff from all over the hospital (even cleaning staff) would say hello to him and ask how he was....  He was surrounded by friends...

After his EEG was done we had a chat with the ever so great **Dr Chugani**.  The plan we have now is to continue for four more months with no changes in medications.. A little spooky with one of them being a bit dangerous but a good plan when it comes from the Dr....  At that time Cully will have another EEG and if all is still clear we will ween Cully off of one more medication..  And after another 6 months, another EEG and the final ween off medication...

The golden words spoke today that we did not expect we would ever hear 6 months ago were as follows:

Dr Chugani :       "Looks like the spasms are behind us now."

Dad :  speechless  with a lump in my throat...

As we were about to leave the Neurology staff gave Cully a little gift... As you can see in the picture above.

While we were awaiting getting prepped for the EEG we sat in the waiting room where we met a wonderful couple and grandmother who were there after their 11 month old had started seizures this past week.  They were standing right where we were 6 months ago and we knew exactly what they were feeling.. ( Should they be reading this...WE REALLY DO.. and we hope you will call on us if you need anything at all.)  After they had their EEG today they were informed that they would begin one of the same medications Cully is on....  I hope that our introduction to them will be a little comforting.  I know that if Julie and I had not been in contact with a certain "someone awesome" from the start we would not have held it together nearly as well and we are very grateful..... VERY!!!

Sawyer did another video for Cully...  Now is a good time to view the old video and then the new video to see a few kinda nice changes....

First video..

New video...